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Neurofibromatosis (NF) is a genetic condition that can cause tumor growth, and there are three different types, NF type 1, type 2, and Schwannomatosis. Below you will find more information about the types and effects. You can also find stories from individuals with NF about our unique journeys on the Meet Us! page.
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Type one
Neurofibromatosis Type 1 (NF1) is the most common NF disorder, occurring in about 1 in every 3,000 births. Besides tumor growth and café-au-lait spots, the disorder can cause various side effects, including learning disabilities, bone deformities, freckling in unusual areas, eye issues, high blood pressure, nerve pain, and an increased cancer risk. for more info go to ctf.org NF1
Type two
Neurofibromatosis Type 2 (NF2 or NF2-swn) is a rare disorder, occurring in about 1 in every 25,000 births. Unlike NF1, NF2 primarily causes non-cancerous tumors on the nerves responsible for hearing and balance. Key side effects can include hearing loss, tinnitus (ringing in the ears), balance problems, vision issues, muscle weakness, and an increased risk of other nervous system tumors. for more info go to ctf.org NF2
Schwannomatosis
Schwannomatosis (SWN)is a rare genetic disorder that affects about 1 in every 40,000 births. It causes non-cancerous tumors called schwannomas to grow on nerves throughout the body, leading to chronic pain, numbness, muscle weakness, and tingling. Unlike similar conditions, Schwannomatosis typically doesn’t impact hearing or balance. for more info go to ctf.org SWN
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